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Understanding and Challenging TB stigma: Toolkit for Action

‘Understanding and challenging TB stigma’ has been developed in response to the need to address TB stigma especially where TB and HIV co-infection rates are high. The publication contains a range of participatory games, exercises and picture tools to help address TB stigma, suitable for a range of contexts and settings.


It was written by and for trainers and will help trainers plan and organise participatory educational sessions with community leaders or organised groups to raise awareness and promote practical action to challenge HIV and TB stigma and discrimination.

This toolkit was developed as part of the Alliance Africa regional stigma training programme through a partnership with ZAMBART (Zambia AIDS-Related Tuberculosis project) Project in Zambia involving participatory workshops with health-workers, people living with HIV and ex-TB patients. Swedish International Development Agency (Sida) and the European Union were the main funders that supported the development of this toolkit.

This toolkit includes 19 participatory exercises with clear and easy to follow instructions aimed at exploring different issues related to TB and stigma:

Naming TB stigma through pictures

How has TB affected my life? (reflection)

Naming TB stigma in different contexts

Forms, effects and causes of TB stigma

Assessing baseline knowledge

Fears about getting TB (risk continuum)

Fears about getting TB at home

Countering myths and misconceptions

TB diagnosis and stigma

Do’s, Don’ts and DOTS

Challenging TB stigma in health facilities

TB-HIV link

The burden of secrecy

Sharing the burden of care

TB and human rights

How men and women experience TB stigma

Children and the wall of silence

To tell or not to tell (children and information)

Empowerment and action planning

Who is this toolkit for?

This toolkit is primarily intended for use by NGO support programmes in Africa who are working on, or intend to work on TB and HIV related issues. The toolkit will also be useful to NGOs and CBOs themselves as well as training organisations and individual trainers working on TB and HIV-related issues.

How can you get a copy of this toolkit?

Electronic copies:

· Click this link to download a PDF of Understanding and challenging TB and Stigma from the Alliance website (3mb).

Printed copies:

· You can order a free copy by replying to this email with TB and Stigma in the subject line. Please also confirm your postal address in your reply in case it has changed since we last contacted you.

Please note that only organisations working in Africa can request a printed copy and the quantity is limited to one per organisation.

How can you help more people get access to this toollkit?

We are keen to promote these resources to people working in Africa. Please pass this information to others who may not have access to the same information as you by mentioning this new toolkit in your e-mail group or similar forum; or on your website by using the link above.

Garry Robson

Communications Assistant

International HIV/AIDS Alliance

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